Sunday, May 20, 2012
Psoriatic Arthritis
How many times have you wished to know someone else that could relate to PsA? I am the only person I know that has it.
I've looked at online boards and thought about joining a support group but for one reason or another I chose not to. I never found one that fit what I needed at the time. After several years of fighting this painful, disfiguring, miserable disease it occurred to me that I had learned a lot and continue to learn a lot about how to manage this disease. Surely it would be better to share what I've learned with those who find themselves In a similar situation. So that's what I'm doing. Sharing what I know in the hopes it might help someone with PsA or RA or psoriasis.
To begin with I will share my diagnosis. I have PsA, sjogrens syndrome, a seizure disorder from a terrible brain injury and at 26 I had an emergency hysterectomy so I'm basically in menopause at 33. I take medicines for these problems and it certainly helps. I've been blessed enough to find an incredible doctor to help me manage these medicines and find the best balance I can. BUT the most important thing I've learned through this process is that I control a great many things that hurt/help me. Everything from stress to the kind of lotions I use have an effect on my health. It's those things I want to share with others in a similar circumstance. I am sure there are others out there just like me and I think we will only defeat these illnesses if we share what we learn with one another. I'm not a doctor and I know these aren't "cures" I can only relate my own experiences in the hopes they might be useful to someone else.
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